Protecting Patients' Rights in Clinical Trial Scenarios: The 'Bee Metaphor' and the Symbiotic Relationship

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This article contains an analysis of a proper distribution of rights between the interest of patients giving their biological data within a clinical trial scenario and the researchers producing results out of these data taking as case of study the EU funded project Advancing Clinico Genomic Trial on Cancer (ACGT). It includes an analysis of the unfair distribution of rights in the Moore and Greenberg cases in the US followed by seven different models to balance these rights within a clinical trial scenario aiming at finding the best equilibrium between patients and researchers.
Original languageEnglish
Title of host publicationAn Information Law for the 21st Century
EditorsMaria Bottis
Number of pages9
PublisherNomiki Bibliothiki Group
Publication date2011
Pages5-13
Chapter1
ISBN (Print)978-960-272-791-1
Publication statusPublished - 2011

ID: 227949953