Informed choice requires information about both benefits and harms

Research output: Contribution to journalJournal articleResearchpeer-review

A study found that women participating in mammography screening were content with the programme and the paternalistic invitations that directly encourage participation and include a pre-specified time of appointment. We argue that this merely reflects that the information presented to the invited women is seriously biased in favour of participation. Women are not informed about the major harms of screening, and the decision to attend has already been made for them by a public authority. This short-circuits informed decision-making and the legislation on informed consent, and violates the autonomy of the women. Screening invitations must present both benefits and harms in a balanced fashion, and should offer, not encourage, participation. It should be stated clearly that the choice not to participate is as sensible as the choice to do so. To allow this to happen, the responsibility for the screening programmes must be separated from the responsibility for the information material.
Original languageEnglish
JournalJournal of Medical Ethics
Volume35
Issue number4
Pages (from-to)268-9
Number of pages1
ISSN0306-6800
DOIs
Publication statusPublished - 2009

Bibliographical note

Keywords: Bias (Epidemiology); Breast Neoplasms; Decision Making; Decision Support Techniques; Early Detection of Cancer; Female; Humans; Informed Consent; Mammography; Patient Education as Topic; Risk Factors

ID: 19979270