Informed choice requires information about both benefits and harms
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Informed choice requires information about both benefits and harms. / Jørgensen, K J; Brodersen, J; Hartling, O J; Nielsen, M; Gøtzsche, P C.
In: Journal of Medical Ethics, Vol. 35, No. 4, 2009, p. 268-9.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Informed choice requires information about both benefits and harms
AU - Jørgensen, K J
AU - Brodersen, J
AU - Hartling, O J
AU - Nielsen, M
AU - Gøtzsche, P C
N1 - Keywords: Bias (Epidemiology); Breast Neoplasms; Decision Making; Decision Support Techniques; Early Detection of Cancer; Female; Humans; Informed Consent; Mammography; Patient Education as Topic; Risk Factors
PY - 2009
Y1 - 2009
N2 - A study found that women participating in mammography screening were content with the programme and the paternalistic invitations that directly encourage participation and include a pre-specified time of appointment. We argue that this merely reflects that the information presented to the invited women is seriously biased in favour of participation. Women are not informed about the major harms of screening, and the decision to attend has already been made for them by a public authority. This short-circuits informed decision-making and the legislation on informed consent, and violates the autonomy of the women. Screening invitations must present both benefits and harms in a balanced fashion, and should offer, not encourage, participation. It should be stated clearly that the choice not to participate is as sensible as the choice to do so. To allow this to happen, the responsibility for the screening programmes must be separated from the responsibility for the information material.
AB - A study found that women participating in mammography screening were content with the programme and the paternalistic invitations that directly encourage participation and include a pre-specified time of appointment. We argue that this merely reflects that the information presented to the invited women is seriously biased in favour of participation. Women are not informed about the major harms of screening, and the decision to attend has already been made for them by a public authority. This short-circuits informed decision-making and the legislation on informed consent, and violates the autonomy of the women. Screening invitations must present both benefits and harms in a balanced fashion, and should offer, not encourage, participation. It should be stated clearly that the choice not to participate is as sensible as the choice to do so. To allow this to happen, the responsibility for the screening programmes must be separated from the responsibility for the information material.
U2 - 10.1136/jme.2008.027961
DO - 10.1136/jme.2008.027961
M3 - Journal article
C2 - 19332586
VL - 35
SP - 268
EP - 269
JO - Journal of Medical Ethics
JF - Journal of Medical Ethics
SN - 0306-6800
IS - 4
ER -
ID: 19979270