High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy

Research output: Contribution to journalJournal articleResearchpeer-review

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High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy. / Hartwig, Tanja Schlaikjaer; Borregaard Miltoft, Caroline; Malmgren, Charlotta Ingvoldstad; Tabor, Ann; Jørgensen, Finn Stener.

In: Prenatal Diagnosis, Vol. 39, No. 8, 2019, p. 635-642.

Research output: Contribution to journalJournal articleResearchpeer-review

Harvard

Hartwig, TS, Borregaard Miltoft, C, Malmgren, CI, Tabor, A & Jørgensen, FS 2019, 'High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy', Prenatal Diagnosis, vol. 39, no. 8, pp. 635-642. https://doi.org/10.1002/pd.5476

APA

Hartwig, T. S., Borregaard Miltoft, C., Malmgren, C. I., Tabor, A., & Jørgensen, F. S. (2019). High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy. Prenatal Diagnosis, 39(8), 635-642. https://doi.org/10.1002/pd.5476

Vancouver

Hartwig TS, Borregaard Miltoft C, Malmgren CI, Tabor A, Jørgensen FS. High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy. Prenatal Diagnosis. 2019;39(8):635-642. https://doi.org/10.1002/pd.5476

Author

Hartwig, Tanja Schlaikjaer ; Borregaard Miltoft, Caroline ; Malmgren, Charlotta Ingvoldstad ; Tabor, Ann ; Jørgensen, Finn Stener. / High risk-What's next? A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy. In: Prenatal Diagnosis. 2019 ; Vol. 39, No. 8. pp. 635-642.

Bibtex

@article{fa4f16995d1c4248a10271036e6764ad,
title = "High risk-What's next?: A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy",
abstract = "OBJECTIVES: To investigate decision making among pregnant women when choosing between noninvasive prenatal testing, invasive testing, or no further testing.METHODS: Women with a high-risk result from the first trimester screening were invited to fill in two online questionnaires at gestational age 12 to 14 (Q1) and 24 weeks (Q2). The scales used were Decisional Conflict and Regret Scales, Satisfaction with genetic Counselling Scale, and Health-Relevant Personality Inventory.RESULTS: Three hundred thirty-nine women agreed to participate, and the response rates were 76{\%} on Q1 and 88{\%} on Q2. A percentage of 75.4{\%} chose an invasive test, 23.8{\%} chose noninvasive prenatal testing (NIPT), 0.4{\%} chose no further testing, and 0.4{\%} had both NIPT and invasive testing. Among all participants, 13.3{\%} had a high level of decisional conflict. We found that choosing NIPT was associated with a high decisional conflict (p = 0.013), receiving genetic counselling the same day was associated with a high decisional conflict (p = 0.039), and a high satisfaction with the genetic counselling was associated with low decisional conflict (p < 0.001). Furthermore, the personality subtrait {"}alexithymia{"} was associated with low decisional conflict (p = 0.043). There was a significant association between high decisional conflict and later decisional regret (p = 0.008).CONCLUSION: We present evidence that satisfaction with and timing of counselling are important factors to limit decisional conflict. Interestingly, women choosing NIPT had more decisional conflict than women choosing invasive testing.",
author = "Hartwig, {Tanja Schlaikjaer} and {Borregaard Miltoft}, Caroline and Malmgren, {Charlotta Ingvoldstad} and Ann Tabor and J{\o}rgensen, {Finn Stener}",
note = "{\circledC} 2019 John Wiley & Sons, Ltd.",
year = "2019",
doi = "10.1002/pd.5476",
language = "English",
volume = "39",
pages = "635--642",
journal = "Prenatal Diagnosis",
issn = "0197-3851",
publisher = "JohnWiley & Sons Ltd",
number = "8",

}

RIS

TY - JOUR

T1 - High risk-What's next?

T2 - A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy

AU - Hartwig, Tanja Schlaikjaer

AU - Borregaard Miltoft, Caroline

AU - Malmgren, Charlotta Ingvoldstad

AU - Tabor, Ann

AU - Jørgensen, Finn Stener

N1 - © 2019 John Wiley & Sons, Ltd.

PY - 2019

Y1 - 2019

N2 - OBJECTIVES: To investigate decision making among pregnant women when choosing between noninvasive prenatal testing, invasive testing, or no further testing.METHODS: Women with a high-risk result from the first trimester screening were invited to fill in two online questionnaires at gestational age 12 to 14 (Q1) and 24 weeks (Q2). The scales used were Decisional Conflict and Regret Scales, Satisfaction with genetic Counselling Scale, and Health-Relevant Personality Inventory.RESULTS: Three hundred thirty-nine women agreed to participate, and the response rates were 76% on Q1 and 88% on Q2. A percentage of 75.4% chose an invasive test, 23.8% chose noninvasive prenatal testing (NIPT), 0.4% chose no further testing, and 0.4% had both NIPT and invasive testing. Among all participants, 13.3% had a high level of decisional conflict. We found that choosing NIPT was associated with a high decisional conflict (p = 0.013), receiving genetic counselling the same day was associated with a high decisional conflict (p = 0.039), and a high satisfaction with the genetic counselling was associated with low decisional conflict (p < 0.001). Furthermore, the personality subtrait "alexithymia" was associated with low decisional conflict (p = 0.043). There was a significant association between high decisional conflict and later decisional regret (p = 0.008).CONCLUSION: We present evidence that satisfaction with and timing of counselling are important factors to limit decisional conflict. Interestingly, women choosing NIPT had more decisional conflict than women choosing invasive testing.

AB - OBJECTIVES: To investigate decision making among pregnant women when choosing between noninvasive prenatal testing, invasive testing, or no further testing.METHODS: Women with a high-risk result from the first trimester screening were invited to fill in two online questionnaires at gestational age 12 to 14 (Q1) and 24 weeks (Q2). The scales used were Decisional Conflict and Regret Scales, Satisfaction with genetic Counselling Scale, and Health-Relevant Personality Inventory.RESULTS: Three hundred thirty-nine women agreed to participate, and the response rates were 76% on Q1 and 88% on Q2. A percentage of 75.4% chose an invasive test, 23.8% chose noninvasive prenatal testing (NIPT), 0.4% chose no further testing, and 0.4% had both NIPT and invasive testing. Among all participants, 13.3% had a high level of decisional conflict. We found that choosing NIPT was associated with a high decisional conflict (p = 0.013), receiving genetic counselling the same day was associated with a high decisional conflict (p = 0.039), and a high satisfaction with the genetic counselling was associated with low decisional conflict (p < 0.001). Furthermore, the personality subtrait "alexithymia" was associated with low decisional conflict (p = 0.043). There was a significant association between high decisional conflict and later decisional regret (p = 0.008).CONCLUSION: We present evidence that satisfaction with and timing of counselling are important factors to limit decisional conflict. Interestingly, women choosing NIPT had more decisional conflict than women choosing invasive testing.

U2 - 10.1002/pd.5476

DO - 10.1002/pd.5476

M3 - Journal article

C2 - 31083781

VL - 39

SP - 635

EP - 642

JO - Prenatal Diagnosis

JF - Prenatal Diagnosis

SN - 0197-3851

IS - 8

ER -

ID: 224599433