Education, employment, and income among people living with cystic fibrosis across three decades

Education, employment, and income among people living with cystic fibrosis across three decades: A matched cohort study using Danish health registries

Research output: Contribution to journal › Journal article › Research › peer-review

Standard

Education, employment, and income among people living with cystic fibrosis across three decades : A matched cohort study using Danish health registries. / Jensen, Camilla Bjørn; Jensen, Kristoffer Jarlov; Pressler, Tacjana; Katzenstein, Terese L.; Skov, Marianne; Qvist, Tavs; Olsen, Mette Frahm; Jeppesen, Majbritt; Jensen-Fangel, Søren; Olesen, Hanne Vebert; Reuter, Simon Bertram; Pedersen, Hans Kristian Råket; Wang, Joanna Nan; Michalopoulos, Steven; McGarry, Lisa; Wöhling, Heike; Petersen, Janne; Jimenez-Solem, Espen; the TransformCF study group.

In: Journal of Cystic Fibrosis, 2024.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Jensen, CB, Jensen, KJ, Pressler, T, Katzenstein, TL, Skov, M, Qvist, T, Olsen, MF, Jeppesen, M, Jensen-Fangel, S, Olesen, HV, Reuter, SB, Pedersen, HKR, Wang, JN, Michalopoulos, S, McGarry, L, Wöhling, H, Petersen, J, Jimenez-Solem, E & the TransformCF study group 2024, 'Education, employment, and income among people living with cystic fibrosis across three decades: A matched cohort study using Danish health registries', Journal of Cystic Fibrosis. https://doi.org/10.1016/j.jcf.2024.03.009

APA

Jensen, C. B., Jensen, K. J., Pressler, T., Katzenstein, T. L., Skov, M., Qvist, T., Olsen, M. F., Jeppesen, M., Jensen-Fangel, S., Olesen, H. V., Reuter, S. B., Pedersen, H. K. R., Wang, J. N., Michalopoulos, S., McGarry, L., Wöhling, H., Petersen, J., Jimenez-Solem, E., & the TransformCF study group (Accepted/In press). Education, employment, and income among people living with cystic fibrosis across three decades: A matched cohort study using Danish health registries. Journal of Cystic Fibrosis. https://doi.org/10.1016/j.jcf.2024.03.009

Vancouver

Jensen CB, Jensen KJ, Pressler T, Katzenstein TL, Skov M, Qvist T et al. Education, employment, and income among people living with cystic fibrosis across three decades: A matched cohort study using Danish health registries. Journal of Cystic Fibrosis. 2024. https://doi.org/10.1016/j.jcf.2024.03.009

Author

Jensen, Camilla Bjørn ; Jensen, Kristoffer Jarlov ; Pressler, Tacjana ; Katzenstein, Terese L. ; Skov, Marianne ; Qvist, Tavs ; Olsen, Mette Frahm ; Jeppesen, Majbritt ; Jensen-Fangel, Søren ; Olesen, Hanne Vebert ; Reuter, Simon Bertram ; Pedersen, Hans Kristian Råket ; Wang, Joanna Nan ; Michalopoulos, Steven ; McGarry, Lisa ; Wöhling, Heike ; Petersen, Janne ; Jimenez-Solem, Espen ; the TransformCF study group. / Education, employment, and income among people living with cystic fibrosis across three decades : A matched cohort study using Danish health registries. In: Journal of Cystic Fibrosis. 2024.

Bibtex

@article{45a76ef8218f4387ae73597f1287728b,

title = "Education, employment, and income among people living with cystic fibrosis across three decades: A matched cohort study using Danish health registries",

abstract = "Background: Past and ongoing advancements in cystic fibrosis (CF) care warrant long-term analysis of the societal impact of the condition. This study aims to evaluate changes in key socioeconomic factors across three decades among people living with CF (pwCF), compared with both the general population and an early-onset chronic disease population. Methods: This nationwide, registry-based, matched cohort study included all pwCF ≥ 18 years in Denmark in the years 1990, 2000, 2010, and 2018. Each person living with CF was matched to five individuals in the general population and five individuals living with type 1 diabetes or juvenile arthritis based on age, sex, and municipality. Results: The Danish adult CF population increased nearly fourfold from 88 in 1990 to 331 in 2018, and mean age increased by ten years. The educational level of pwCF was similar to the two comparator cohorts, while pwCF were less often in employment and more often permanently outside the labor force. Personal and household income levels of the CF cohort were higher than those of the comparator cohorts. Conclusions: The disadvantage in employment for pwCF remained, but, over time, the societal profiles of the one-year CF cohorts increasingly converged with those of the comparator cohorts, indicative of improved clinical management, extended life expectancy, and the supportive role of the Danish welfare system in reducing health inequalities. Further research should be done to evaluate the effects of the newly introduced modulator therapies on employment, considering the broader societal impact and impact on quality of life.",

keywords = "Cystic fibrosis, Education, Employment, Income",

author = "Jensen, {Camilla Bj{\o}rn} and Jensen, {Kristoffer Jarlov} and Tacjana Pressler and Katzenstein, {Terese L.} and Marianne Skov and Tavs Qvist and Olsen, {Mette Frahm} and Majbritt Jeppesen and S{\o}ren Jensen-Fangel and Olesen, {Hanne Vebert} and Reuter, {Simon Bertram} and Pedersen, {Hans Kristian R{\aa}ket} and Wang, {Joanna Nan} and Steven Michalopoulos and Lisa McGarry and Heike W{\"o}hling and Janne Petersen and Espen Jimenez-Solem and {the TransformCF study group}",

note = "Publisher Copyright: {\textcopyright} 2024",

year = "2024",

doi = "10.1016/j.jcf.2024.03.009",

language = "English",

journal = "Journal of Cystic Fibrosis",

issn = "1569-1993",

publisher = "Elsevier",

}

RIS

TY - JOUR

T1 - Education, employment, and income among people living with cystic fibrosis across three decades

T2 - A matched cohort study using Danish health registries

AU - Jensen, Camilla Bjørn

AU - Jensen, Kristoffer Jarlov

AU - Pressler, Tacjana

AU - Katzenstein, Terese L.

AU - Skov, Marianne

AU - Qvist, Tavs

AU - Olsen, Mette Frahm

AU - Jeppesen, Majbritt

AU - Jensen-Fangel, Søren

AU - Olesen, Hanne Vebert

AU - Reuter, Simon Bertram

AU - Pedersen, Hans Kristian Råket

AU - Wang, Joanna Nan

AU - Michalopoulos, Steven

AU - McGarry, Lisa

AU - Wöhling, Heike

AU - Petersen, Janne

AU - Jimenez-Solem, Espen

AU - the TransformCF study group

PY - 2024

Y1 - 2024

N2 - Background: Past and ongoing advancements in cystic fibrosis (CF) care warrant long-term analysis of the societal impact of the condition. This study aims to evaluate changes in key socioeconomic factors across three decades among people living with CF (pwCF), compared with both the general population and an early-onset chronic disease population. Methods: This nationwide, registry-based, matched cohort study included all pwCF ≥ 18 years in Denmark in the years 1990, 2000, 2010, and 2018. Each person living with CF was matched to five individuals in the general population and five individuals living with type 1 diabetes or juvenile arthritis based on age, sex, and municipality. Results: The Danish adult CF population increased nearly fourfold from 88 in 1990 to 331 in 2018, and mean age increased by ten years. The educational level of pwCF was similar to the two comparator cohorts, while pwCF were less often in employment and more often permanently outside the labor force. Personal and household income levels of the CF cohort were higher than those of the comparator cohorts. Conclusions: The disadvantage in employment for pwCF remained, but, over time, the societal profiles of the one-year CF cohorts increasingly converged with those of the comparator cohorts, indicative of improved clinical management, extended life expectancy, and the supportive role of the Danish welfare system in reducing health inequalities. Further research should be done to evaluate the effects of the newly introduced modulator therapies on employment, considering the broader societal impact and impact on quality of life.

AB - Background: Past and ongoing advancements in cystic fibrosis (CF) care warrant long-term analysis of the societal impact of the condition. This study aims to evaluate changes in key socioeconomic factors across three decades among people living with CF (pwCF), compared with both the general population and an early-onset chronic disease population. Methods: This nationwide, registry-based, matched cohort study included all pwCF ≥ 18 years in Denmark in the years 1990, 2000, 2010, and 2018. Each person living with CF was matched to five individuals in the general population and five individuals living with type 1 diabetes or juvenile arthritis based on age, sex, and municipality. Results: The Danish adult CF population increased nearly fourfold from 88 in 1990 to 331 in 2018, and mean age increased by ten years. The educational level of pwCF was similar to the two comparator cohorts, while pwCF were less often in employment and more often permanently outside the labor force. Personal and household income levels of the CF cohort were higher than those of the comparator cohorts. Conclusions: The disadvantage in employment for pwCF remained, but, over time, the societal profiles of the one-year CF cohorts increasingly converged with those of the comparator cohorts, indicative of improved clinical management, extended life expectancy, and the supportive role of the Danish welfare system in reducing health inequalities. Further research should be done to evaluate the effects of the newly introduced modulator therapies on employment, considering the broader societal impact and impact on quality of life.

KW - Cystic fibrosis

KW - Education

KW - Employment

KW - Income

U2 - 10.1016/j.jcf.2024.03.009

DO - 10.1016/j.jcf.2024.03.009

M3 - Journal article

C2 - 38485602

AN - SCOPUS:85188749643

JO - Journal of Cystic Fibrosis

JF - Journal of Cystic Fibrosis

SN - 1569-1993

ER -

ID: 387940180