The EU Child Cohort Network's core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables
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The EU Child Cohort Network's core data : establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables. / Pinot de Moira, Angela; Haakma, Sido; Strandberg-Larsen, Katrine; van Enckevort, Esther; Kooijman, Marjolein; Cadman, Tim; Cardol, Marloes; Corpeleijn, Eva; Crozier, Sarah; Duijts, Liesbeth; Elhakeem, Ahmed; Eriksson, Johan G; Felix, Janine F; Fernández-Barrés, Sílvia; Foong, Rachel E; Forhan, Anne; Grote, Veit; Guerlich, Kathrin; Heude, Barbara; Huang, Rae-Chi; Järvelin, Marjo-Riitta; Jørgensen, Anne Cathrine; Mikkola, Tuija M; Nader, Johanna L T; Pedersen, Marie; Popovic, Maja; Rautio, Nina; Richiardi, Lorenzo; Ronkainen, Justiina; Roumeliotaki, Theano; Salika, Theodosia; Sebert, Sylvain; Vinther, Johan L; Voerman, Ellis; Vrijheid, Martine; Wright, John; Yang, Tiffany C; Zariouh, Faryal; Charles, Marie-Aline; Inskip, Hazel; Jaddoe, Vincent W V; Swertz, Morris A; Nybo Andersen, Anne-Marie; LifeCycle Project Group.
In: European Journal of Epidemiology, Vol. 36, 2021, p. 565–580.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - The EU Child Cohort Network's core data
T2 - establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables
AU - Pinot de Moira, Angela
AU - Haakma, Sido
AU - Strandberg-Larsen, Katrine
AU - van Enckevort, Esther
AU - Kooijman, Marjolein
AU - Cadman, Tim
AU - Cardol, Marloes
AU - Corpeleijn, Eva
AU - Crozier, Sarah
AU - Duijts, Liesbeth
AU - Elhakeem, Ahmed
AU - Eriksson, Johan G
AU - Felix, Janine F
AU - Fernández-Barrés, Sílvia
AU - Foong, Rachel E
AU - Forhan, Anne
AU - Grote, Veit
AU - Guerlich, Kathrin
AU - Heude, Barbara
AU - Huang, Rae-Chi
AU - Järvelin, Marjo-Riitta
AU - Jørgensen, Anne Cathrine
AU - Mikkola, Tuija M
AU - Nader, Johanna L T
AU - Pedersen, Marie
AU - Popovic, Maja
AU - Rautio, Nina
AU - Richiardi, Lorenzo
AU - Ronkainen, Justiina
AU - Roumeliotaki, Theano
AU - Salika, Theodosia
AU - Sebert, Sylvain
AU - Vinther, Johan L
AU - Voerman, Ellis
AU - Vrijheid, Martine
AU - Wright, John
AU - Yang, Tiffany C
AU - Zariouh, Faryal
AU - Charles, Marie-Aline
AU - Inskip, Hazel
AU - Jaddoe, Vincent W V
AU - Swertz, Morris A
AU - Nybo Andersen, Anne-Marie
AU - LifeCycle Project Group
PY - 2021
Y1 - 2021
N2 - The Horizon2020 LifeCycle Project is a cross-cohort collaboration which brings together data from multiple birth cohorts from across Europe and Australia to facilitate studies on the influence of early-life exposures on later health outcomes. A major product of this collaboration has been the establishment of a FAIR (findable, accessible, interoperable and reusable) data resource known as the EU Child Cohort Network. Here we focus on the EU Child Cohort Network's core variables. These are a set of basic variables, derivable by the majority of participating cohorts and frequently used as covariates or exposures in lifecourse research. First, we describe the process by which the list of core variables was established. Second, we explain the protocol according to which these variables were harmonised in order to make them interoperable. Third, we describe the catalogue developed to ensure that the network's data are findable and reusable. Finally, we describe the core data, including the proportion of variables harmonised by each cohort and the number of children for whom harmonised core data are available. EU Child Cohort Network data will be analysed using a federated analysis platform, removing the need to physically transfer data and thus making the data more accessible to researchers. The network will add value to participating cohorts by increasing statistical power and exposure heterogeneity, as well as facilitating cross-cohort comparisons, cross-validation and replication. Our aim is to motivate other cohorts to join the network and encourage the use of the EU Child Cohort Network by the wider research community.
AB - The Horizon2020 LifeCycle Project is a cross-cohort collaboration which brings together data from multiple birth cohorts from across Europe and Australia to facilitate studies on the influence of early-life exposures on later health outcomes. A major product of this collaboration has been the establishment of a FAIR (findable, accessible, interoperable and reusable) data resource known as the EU Child Cohort Network. Here we focus on the EU Child Cohort Network's core variables. These are a set of basic variables, derivable by the majority of participating cohorts and frequently used as covariates or exposures in lifecourse research. First, we describe the process by which the list of core variables was established. Second, we explain the protocol according to which these variables were harmonised in order to make them interoperable. Third, we describe the catalogue developed to ensure that the network's data are findable and reusable. Finally, we describe the core data, including the proportion of variables harmonised by each cohort and the number of children for whom harmonised core data are available. EU Child Cohort Network data will be analysed using a federated analysis platform, removing the need to physically transfer data and thus making the data more accessible to researchers. The network will add value to participating cohorts by increasing statistical power and exposure heterogeneity, as well as facilitating cross-cohort comparisons, cross-validation and replication. Our aim is to motivate other cohorts to join the network and encourage the use of the EU Child Cohort Network by the wider research community.
U2 - 10.1007/s10654-021-00733-9
DO - 10.1007/s10654-021-00733-9
M3 - Journal article
C2 - 33884544
VL - 36
SP - 565
EP - 580
JO - European Journal of Epidemiology
JF - European Journal of Epidemiology
SN - 0393-2990
ER -
ID: 262802660