Making Access to a Population of Bodies in the Name of Autonomy
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Making Access to a Population of Bodies in the Name of Autonomy. / Asmussen, Ida Helene; Ó Cathaoir, Katharina Eva.
In: European Journal of Health Law, Vol. 25, No. 5, 2018, p. 555-572.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Making Access to a Population of Bodies in the Name of Autonomy
AU - Asmussen, Ida Helene
AU - Ó Cathaoir, Katharina Eva
PY - 2018
Y1 - 2018
N2 - Developments within biotechnology are of a pace and complexity that challenge the predictability at the foundation of legislation, i.e. the possibility for politicians to foresee pitfalls and hazards, and design legislation accordingly. The lack of predictability is not only a challenge for the legislature, but also for the citizen, who is to consent to the new biotech services offered by the health authorities. How can one give informed consent to a measure, the consequences of which is hard to predict? Does the uncertainty and lack of predictability mean that paternalism slipped back in as a 'self-selected' responsiveness to the rhetoric of the health regime? Recently, Denmark has taken another step in the direction of voiding autonomy of actual value by rendering genetic analysis contingent on agreeing that the resulting data may be stored in the recently established National Genome Centre, and reused for research unless the patient opts out.
AB - Developments within biotechnology are of a pace and complexity that challenge the predictability at the foundation of legislation, i.e. the possibility for politicians to foresee pitfalls and hazards, and design legislation accordingly. The lack of predictability is not only a challenge for the legislature, but also for the citizen, who is to consent to the new biotech services offered by the health authorities. How can one give informed consent to a measure, the consequences of which is hard to predict? Does the uncertainty and lack of predictability mean that paternalism slipped back in as a 'self-selected' responsiveness to the rhetoric of the health regime? Recently, Denmark has taken another step in the direction of voiding autonomy of actual value by rendering genetic analysis contingent on agreeing that the resulting data may be stored in the recently established National Genome Centre, and reused for research unless the patient opts out.
M3 - Journal article
VL - 25
SP - 555
EP - 572
JO - European Journal of Health Law
JF - European Journal of Health Law
SN - 0929-0273
IS - 5
ER -
ID: 203566174