Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7

Research output: Contribution to journal › Journal article › Research › peer-review

Standard

Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers : The Danish High Risk and Resilience Study - VIA 7. / Rohd, Sinnika Birkehøj; Hjorthøj, Carsten; Ohland, Jessica; Gregersen, Maja; Hemager, Nicoline; Søndergaard, Anne; Christiani, Camilla Austa; Spang, Katrine Soeborg; Ellersgaard, Ditte; Burton, Birgitte Klee; Melau, Marianne; Greve, Aja; Gantriis, Ditte Lou; Jepsen, Jens Richardt Møllegaard; Plessen, Kerstin Jessica; Mors, Ole; Nordentoft, Merete; Harder, Susanne; Thorup, Anne Amalie Elgaard.

In: Development and Psychopathology, Vol. 35, No. 3, 2023.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Rohd, SB, Hjorthøj, C, Ohland, J, Gregersen, M, Hemager, N, Søndergaard, A, Christiani, CA, Spang, KS, Ellersgaard, D, Burton, BK, Melau, M, Greve, A, Gantriis, DL, Jepsen, JRM, Plessen, KJ, Mors, O, Nordentoft, M, Harder, S & Thorup, AAE 2023, 'Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7', Development and Psychopathology, vol. 35, no. 3. https://doi.org/10.1017/S0954579422000281

APA

Rohd, S. B., Hjorthøj, C., Ohland, J., Gregersen, M., Hemager, N., Søndergaard, A., Christiani, C. A., Spang, K. S., Ellersgaard, D., Burton, B. K., Melau, M., Greve, A., Gantriis, D. L., Jepsen, J. R. M., Plessen, K. J., Mors, O., Nordentoft, M., Harder, S., & Thorup, A. A. E. (2023). Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7. Development and Psychopathology, 35(3). https://doi.org/10.1017/S0954579422000281

Vancouver

Rohd SB, Hjorthøj C, Ohland J, Gregersen M, Hemager N, Søndergaard A et al. Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7. Development and Psychopathology. 2023;35(3). https://doi.org/10.1017/S0954579422000281

Author

Rohd, Sinnika Birkehøj ; Hjorthøj, Carsten ; Ohland, Jessica ; Gregersen, Maja ; Hemager, Nicoline ; Søndergaard, Anne ; Christiani, Camilla Austa ; Spang, Katrine Soeborg ; Ellersgaard, Ditte ; Burton, Birgitte Klee ; Melau, Marianne ; Greve, Aja ; Gantriis, Ditte Lou ; Jepsen, Jens Richardt Møllegaard ; Plessen, Kerstin Jessica ; Mors, Ole ; Nordentoft, Merete ; Harder, Susanne ; Thorup, Anne Amalie Elgaard. / Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers : The Danish High Risk and Resilience Study - VIA 7. In: Development and Psychopathology. 2023 ; Vol. 35, No. 3.

Bibtex

@article{f199022bcd31450f8c57b98120024e5f,
title = "Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7",
abstract = "This study investigates indicators of disorganized caregiving among caregivers of children who have a familial predisposition of schizophrenia spectrum psychosis (SZ) or bipolar disorder (BP), and whether indicators of disorganized caregiving are associated with the caregivers' and children's level of functioning as well as the children's internalizing and externalizing behavior problems. Indicators of disorganized caregiving were assessed with the Caregiving Helplessness Questionnaire (CHQ). Level of functioning was evaluated using the Children's Global Assessment Scale and the Personal and Social Performance Scale, while dimensional psychopathology were measured with the Child Behavior Checklist. 185 caregivers belonging to a SZ combined group (i.e., SZ-I + SZ co-caregiver), 110 caregivers to a BP combined group (i.e., BP-I + BP co-caregiver), and 184 caregivers to a population-based control group provided data on CHQ. Having a history of SZ or BP or being a co-caregiver to a parent with SZ or BP was associated with higher levels of experiences of helplessness and fear. Higher scores on helplessness were associated with lower level of functioning among caregivers and children and with children having externalizing/internalizing behavior problems. These results emphasize the need for interventions addressing indicators of disorganized caregiving in families with SZ or BP.",
author = "Rohd, {Sinnika Birkeh{\o}j} and Carsten Hjorth{\o}j and Jessica Ohland and Maja Gregersen and Nicoline Hemager and Anne S{\o}ndergaard and Christiani, {Camilla Austa} and Spang, {Katrine Soeborg} and Ditte Ellersgaard and Burton, {Birgitte Klee} and Marianne Melau and Aja Greve and Gantriis, {Ditte Lou} and Jepsen, {Jens Richardt M{\o}llegaard} and Plessen, {Kerstin Jessica} and Ole Mors and Merete Nordentoft and Susanne Harder and Thorup, {Anne Amalie Elgaard}",
year = "2023",
doi = "10.1017/S0954579422000281",
language = "English",
volume = "35",
journal = "Development and Psychopathology",
issn = "0954-5794",
publisher = "Cambridge University Press",
number = "3",

}

RIS

TY - JOUR

T1 - Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers

T2 - The Danish High Risk and Resilience Study - VIA 7

AU - Rohd, Sinnika Birkehøj

AU - Hjorthøj, Carsten

AU - Ohland, Jessica

AU - Gregersen, Maja

AU - Hemager, Nicoline

AU - Søndergaard, Anne

AU - Christiani, Camilla Austa

AU - Spang, Katrine Soeborg

AU - Ellersgaard, Ditte

AU - Burton, Birgitte Klee

AU - Melau, Marianne

AU - Greve, Aja

AU - Gantriis, Ditte Lou

AU - Jepsen, Jens Richardt Møllegaard

AU - Plessen, Kerstin Jessica

AU - Mors, Ole

AU - Nordentoft, Merete

AU - Harder, Susanne

AU - Thorup, Anne Amalie Elgaard

PY - 2023

Y1 - 2023

N2 - This study investigates indicators of disorganized caregiving among caregivers of children who have a familial predisposition of schizophrenia spectrum psychosis (SZ) or bipolar disorder (BP), and whether indicators of disorganized caregiving are associated with the caregivers' and children's level of functioning as well as the children's internalizing and externalizing behavior problems. Indicators of disorganized caregiving were assessed with the Caregiving Helplessness Questionnaire (CHQ). Level of functioning was evaluated using the Children's Global Assessment Scale and the Personal and Social Performance Scale, while dimensional psychopathology were measured with the Child Behavior Checklist. 185 caregivers belonging to a SZ combined group (i.e., SZ-I + SZ co-caregiver), 110 caregivers to a BP combined group (i.e., BP-I + BP co-caregiver), and 184 caregivers to a population-based control group provided data on CHQ. Having a history of SZ or BP or being a co-caregiver to a parent with SZ or BP was associated with higher levels of experiences of helplessness and fear. Higher scores on helplessness were associated with lower level of functioning among caregivers and children and with children having externalizing/internalizing behavior problems. These results emphasize the need for interventions addressing indicators of disorganized caregiving in families with SZ or BP.

AB - This study investigates indicators of disorganized caregiving among caregivers of children who have a familial predisposition of schizophrenia spectrum psychosis (SZ) or bipolar disorder (BP), and whether indicators of disorganized caregiving are associated with the caregivers' and children's level of functioning as well as the children's internalizing and externalizing behavior problems. Indicators of disorganized caregiving were assessed with the Caregiving Helplessness Questionnaire (CHQ). Level of functioning was evaluated using the Children's Global Assessment Scale and the Personal and Social Performance Scale, while dimensional psychopathology were measured with the Child Behavior Checklist. 185 caregivers belonging to a SZ combined group (i.e., SZ-I + SZ co-caregiver), 110 caregivers to a BP combined group (i.e., BP-I + BP co-caregiver), and 184 caregivers to a population-based control group provided data on CHQ. Having a history of SZ or BP or being a co-caregiver to a parent with SZ or BP was associated with higher levels of experiences of helplessness and fear. Higher scores on helplessness were associated with lower level of functioning among caregivers and children and with children having externalizing/internalizing behavior problems. These results emphasize the need for interventions addressing indicators of disorganized caregiving in families with SZ or BP.

U2 - 10.1017/S0954579422000281

DO - 10.1017/S0954579422000281

M3 - Journal article

C2 - 35659307

VL - 35

JO - Development and Psychopathology

JF - Development and Psychopathology

SN - 0954-5794

IS - 3

ER -

ID: 310208954