Danish National Lymphoma Registry
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Danish National Lymphoma Registry. / Arboe, Bente; Josefsson, Pär; Jørgensen, Judit; Haaber, Jacob; Jensen, Paw; Poulsen, Christian; Rønnov-Jessen, Dorthe; Pedersen, Robert Schou; Pedersen, Per Dedenroth; Frederiksen, Mikael; Pedersen, Michael; Brown, Peter de Nully.
In: Clinical Epidemiology, Vol. 8, 25.10.2016, p. 577-581.Research output: Contribution to journal › Review › Research › peer-review
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TY - JOUR
T1 - Danish National Lymphoma Registry
AU - Arboe, Bente
AU - Josefsson, Pär
AU - Jørgensen, Judit
AU - Haaber, Jacob
AU - Jensen, Paw
AU - Poulsen, Christian
AU - Rønnov-Jessen, Dorthe
AU - Pedersen, Robert Schou
AU - Pedersen, Per Dedenroth
AU - Frederiksen, Mikael
AU - Pedersen, Michael
AU - Brown, Peter de Nully
PY - 2016/10/25
Y1 - 2016/10/25
N2 - AIM OF DATABASE: The Danish National Lymphoma Registry (LYFO) was established in order to monitor and improve the diagnostic evaluation and the quality of treatment of all lymphoma patients in Denmark.STUDY POPULATION: The LYFO database was established in 1982 as a seminational database including all lymphoma patients referred to the departments of hematology. The database became nationwide on January 1, 2000.MAIN VARIABLES: The main variables include both clinical and paraclinical variables as well as details of treatment and treatment evaluation. Up to four forms are completed for each patient: a primary registration form, a treatment form, a relapse form, and a follow-up form. Variables are used to calculate six result quality indicators (mortality 30 and 180 days after diagnosis, response to first-line treatment, and survival estimates 1, 3, and 5 years after the time of diagnosis), and three process quality indicators (time from diagnosis until the start of treatment, the presence of relevant diagnostic markers, and inclusion rate in clinical protocols).DESCRIPTIVE DATA: Approximately 23,000 patients were registered in the period 1982-2014 with a median age of 65 years (range: 16-100 years) and a male/female ratio of 1.23:1. Patients can be registered with any of 42 different subtypes according to the World Health Organization classifications.CONCLUSION: LYFO is a nationwide database for all lymphoma patients in Denmark and includes detailed information. This information is used for both epidemiological research and clinical follow-up as well as for administrative purposes.
AB - AIM OF DATABASE: The Danish National Lymphoma Registry (LYFO) was established in order to monitor and improve the diagnostic evaluation and the quality of treatment of all lymphoma patients in Denmark.STUDY POPULATION: The LYFO database was established in 1982 as a seminational database including all lymphoma patients referred to the departments of hematology. The database became nationwide on January 1, 2000.MAIN VARIABLES: The main variables include both clinical and paraclinical variables as well as details of treatment and treatment evaluation. Up to four forms are completed for each patient: a primary registration form, a treatment form, a relapse form, and a follow-up form. Variables are used to calculate six result quality indicators (mortality 30 and 180 days after diagnosis, response to first-line treatment, and survival estimates 1, 3, and 5 years after the time of diagnosis), and three process quality indicators (time from diagnosis until the start of treatment, the presence of relevant diagnostic markers, and inclusion rate in clinical protocols).DESCRIPTIVE DATA: Approximately 23,000 patients were registered in the period 1982-2014 with a median age of 65 years (range: 16-100 years) and a male/female ratio of 1.23:1. Patients can be registered with any of 42 different subtypes according to the World Health Organization classifications.CONCLUSION: LYFO is a nationwide database for all lymphoma patients in Denmark and includes detailed information. This information is used for both epidemiological research and clinical follow-up as well as for administrative purposes.
KW - Review
KW - Journal Article
U2 - 10.2147/CLEP.S99470
DO - 10.2147/CLEP.S99470
M3 - Review
C2 - 27822102
VL - 8
SP - 577
EP - 581
JO - Clinical Epidemiology
JF - Clinical Epidemiology
SN - 1179-1349
ER -
ID: 174461593