Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future

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Jesper Grarup, Ole Kirk, Jens Lundgren, Dorthe Raben, Writing group for the Kids to Adults Working Group and Data Management and Harmonisation Group in EuroCoord

Accurate ascertainment of the number of children living with human immunodeficiency virus (HIV) is important to plan paediatric and adolescent health services. In Europe, the first generation of perinatally HIV-infected survivors are transferring to adult care and their health needs are unknown. We undertook an online survey of HIV cohort studies participating in the EuroCoord Network of Excellence to ascertain the number of perinatally HIV-infected (pHIV) patients included, to compare it with those published by the European Centre for Disease Prevention and Control (ECDC) and the World Health Organization (WHO) and to assess the ability of countries to follow up pHIV patients after transfer to adult care. At the end of 2013, 16 countries in EuroCoord reported 8,229 pHIV patients in follow-up in cohorts, compared with 5,160 cumulative diagnoses reported by the ECDC in the same area. Follow-up of pHIV patients after transfer to adult care varied. It is likely that the number of diagnoses of perinatal HIV reported to ECDC is an underestimate, although this varies by country. Further work is needed to refine estimates and encourage follow-up in adult HIV cohorts to investigate long-term outcomes and improve the care of the next generation of children with HIV.

Original languageEnglish
Article number30162
JournalEurosurveillance (Print)
Volume21
Issue number10
ISSN1025-496X
DOIs
Publication statusPublished - 2016

    Research areas

  • Adolescent, Adult, Cohort Studies, Europe, Female, HIV Infections, Humans, Infant, Newborn, Infectious Disease Transmission, Vertical, Surveys and Questionnaires, Young Adult, Journal Article, Research Support, Non-U.S. Gov't

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